That one question we are asked by healthcare professionals, friends, family and nosy neighbours....

Thursday, 30 August 2012

A change in medication!

As any sufferer of chronic pain will know having the right medication can make a world of difference. At times we can feel like guinea pigs being told to try one pill after another. Each time we are hoping that this one will work and improve our standard of living.

Following my appointment at Guys I have stopped taking both Fluoxetine and Amitriptyline in preparation to start taking Duloxetine and possibly Pregabalin. Now I have been taking the first two for some time and in my opinion should have been weaned off. However my GP had different ideas... "It will be a much quicker process if you just stop taking them". And so this is now day 11 of not having taken anything other than Codeine throughout the day.

There was a slight problem with the letter from Guys to myself and the GP detailing the change in meds in the sense that it was not clear with the dosage of Pregabalin. Now instead of my GP calling, emailing or writing to the hospital in time for my appointment with him, he requests that I should call Guys and find out the information! What a waste of an appointment as when I called you just get a pre-recorded message and they endeavour to call you back within three working days. Now to my mind this is also very unprofessional, how can the GP prescribe me a drug with no written confirmation of dose? 

Week one was definitely harder, I was extremely irritable, emotional and not to mention exhausted. I could not get to sleep at night which in turn meant I was not getting enough sleep. This made me a very difficult person to be around. Although I am still very tired and somewhat tearful the other side affects seem to have died down. On Monday I shall start the Duloxetine and begin the cycle of a whole new set of side affects, oh joy!

Have you tried and tested lots of different medication? Have you found something that really works for you?

Take care for now

Marie x


  1. Marie,
    Since I've had fibro, I've become ultra-sensitive to medications and medication changes. I use tramadol (painkiller) and an herbal muscle relaxer containing magnesium, calcium, valerian, and passion flower. This combination seems to work the best for me and I have not changed doses in years. I have become allergic to most other narcotic pain medications and tried all the other medications that are labeled for fibromyalgia without success. This would include duloxetine, milnacipran, and pregabalin. I especially can not take antidepressants - they have the opposite effect on me and make me depressed and suicidal. I think that it is often a trial and error for fibro sufferers to find medications that work for them. I know that most doctors don't like for us to take pain medications, and that the consensus has been that muscle relaxants only work for the first 6 months, but I can tell you that isn't so. I periodically try to remove myself from my medications, and I become just a shuffling zombie. Unable to accomplish anything except maybe eating a little and then going back to bed. My medications allow me to live my life to the best of my ability.
    Keep your chin up, Honey.

  2. Hi Laura,

    Thanks for your comment. I hope to one day accomplish what you have. At the moment life is very difficult and being treated like a lab rat with all these medications changes is beginning to take it's toll. I am trying very hard to stick with it all so that I too can live my life to the best of my ability. It seems I don't live I just merely exist. All I can do for now is plod on and try to keep a positive mental attitude towards it all.

    Thank you again,

    Marie x